On Tuesday I spoke out in Parliament during a debate about the availability of medicines for those suffering from rare diseases. The Grandmother of Sam Brown lives in my area. Sam is a young boy who suffers from Morquio syndrome an incredibly rare disease which affects the way his skeleton grows. He has been taking the drug Vimizim, the only drug for his condition, which has been funded so far by the pharmaceutical manufacturer but the National Institute for Health and Clinical Excellence (NICE) say it is expensive and its benefits have been overestimated.